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What would you like to see on Our Invisible World?

August 23, 2014

Research article! Link between dementia and vitamin D confirmed.

Have memory issues? Check if your vitamin D level is low. Your doctor likely won’t point it out to you. My mom, who has dementia at 57 (brain scan confirmed) and has always had memory issues, had low vitamin D on tests for years before she heard she should check her results. I have memory issues too – this is one of the main symptoms of M.E./CFS and fibromyalgia.

Today In OT’s layman-friendly summary:

http://news.todayinot.com/article/20140816/TODAYINOT0104/308160020?utm_content=sf29961744&utm_medium=spredfast&utm_source=facebook&utm_campaign=social2013&sf29961744=1

The actual peer-reviewed evidence-based scientific research study:

http://m.neurology.org/content/early/2014/08/06/WNL.0000000000000755

How to get tested for vitamin D:

http://www.vitamindcouncil.org/about-vitamin-d/testing-for-vitamin-d/

How to get tested for dementia and other info:

http://www.fightdementia.org.au/understanding-dementia/early-diagnosis-of-dementia.aspx

Awareness: An article – The difference between CFS and fibro; A poll – Fatigue versus pain

To differentiate in regards to fatigue, while fatigue is one symptom of fibromyalgia, the fatigue of CFS (chronic fatigue syndrome) is far, far more extreme. CFS and fibro also come along with different neuroimmune symptoms – they are not “just pain” or “just fatigue.” Personally, of all of them, my CFS is by far the most disabling, my POTS comes second, and my fibro comes last. Out of thousands of people who have both fatigue and pain as part of their fibro and commented on which of the 2 is personally more disabling, every single person said the same thing (their fatigue is more disabling than their pain); not a one said otherwise. I have had CFS all my life, I got both fibromyalgia and POTS/dysautonomia at 18, and my CFS became more severe at 22.

This article on how to differentiate between CFS and fibromyalgia is helpful. Cort Johnson, the source, is one of the best resources for ME/CFS and fibromyalgia research and is highly recommended.

For Fun/Support: Memes the word! ;)

Brain fog..What day is it again?! (checking every half hour) How long ago did the weekend happen? Oh wow, it was just yesterday!!! What did I do this morning and what am I supposed to be doing today and this week? I can NOT figure out the answer….Brain Fog Meme

Chronic illness is the craziest longest hellish marathon every day of your life. It’s like walking a tight rope trying to juggle your spoons (for spoons meaning click on “quick terminology” page at the top of this page) and if you fall you could pay dearly physically (pacing and energy efficiency). Don’t look back, don’t look down, and keep looking straight ahead. It’s so hard to keep your eyes on good things and your thoughts from being discouraged. It’s okay to have a good cry sometimes! ;) It’s tempting to look back at “before the illness,” but we must accept our journey for what it is, be here now in the present, and stay faithful and hopeful for the future. Do not compare yourself to others. That’s dangerous, as everyone seems to be moving on with life and leaving us behind, stuck here in place waiting for our lives to start again. We’ve got to guard our hearts through it. Humor is a God-send and I make a point to enjoyably laugh at how interesting my life is every time I make a brainfog mistake. We’ve got to keep a positive courageous attitude so that people can focus on the illness and helping us build awareness, rather than people see discouraged attitudes and reinforce the stigma of, “It’s all in your head.”

download Comparison-is-the-thief-of-joy

Proverbs 4.23-27proverbs4-23-oliviasellke-wordpress

 

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My Tips: Nutrition – himalayan salt

Make the switch from table salt to himalayan salt! It’s only like $1 more at regular grocery stores. Not only does it taste just as good and is way healthier but it also is like taking a multi-vitamin, I kid you not, due to the 84 minerals and magnesium it naturally contains. Why not switch?!? (Fact: Everyone should take magnesium. Magnesium is a natural muscle-relaxant, which is great for fibro and other chronic illnesses, and also promotes sleep and regulates digestion.)

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My Tips: Nutrition, Love Yourself Green, and a Detoxinista recipe

First, an awareness fact: Many people with chronic neuroimmune illness have food sensitivities as well. If you are newly diagnosed (or even a veteran), you might want to check into this. These individuals find that they have a worsening of symptoms after eating certain foods and when they eliminate the trigger food they feel better. We are not crazy gluten-hating vegan hippies; we just want to feel less sick and who in their right mind could blame us? Personally, I react to dairy and wheat. Ask those close to me, I start coughing and feel very ill (some days worse than others) when I eat those 2 trigger foods. Sadly, the wheat thing includes beer, hah. To be honest, I currently do not follow a strict diet on the weekends though like I did in 2013 – just mostly through the week.

But never fear, there are so many great-tasting healthy recipes! And there are so many blogs out there with great recipes targeted for illness.

My friend Rachael Able runs 2 such blogs, Love Yourself Green and Simply Fresh Cooking. Unlike me, she strictly practices what she preaches about her diet. What is unique about Rachael is that: she is a life coach specializing in motivation and inspiration for a healthy nutritious and “green” lifestyle; she is knowledgable and experienced with gluten, grain, and dairy sensitivity; and she inspires a less stressful life and motivation for success in all areas of life. Read more about her on my Our Faces page. Here is a Love Yourself Green recipe of hers I love (she was a guest on the Paleo Demystified blog so it’s not her blog on the link). One of my favorite meals ever I love to make is stuffed peppers / chile relleno!!!

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Next, I am a fan of Detoxionista (Facebook and website). She follows a grain-free, gluten-free, vegan diet (I’m personally never vegan or grain-free, for the record). Can sweets get more health-purpose-driven than her lactation cookies?! Haha. ;) Here’s a new Detoxionista recipe I’m in love with lately, a healthy peanut butter and jelly smoothie! It will satisfy your sweet tooth and curb your appetite in a healthy way! I have gastroparesis and blood-pooling as a symptom of my POTS so smoothies are a great way for me to get a punch of nutrients without something heavy in my stomach, and smoothies are a great way for anyone to quickly get their vitamins! :)

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Important health/nutrition TIPS from me: For that PB&J smoothie, I substituted the date for coconut palm sugar and the almond milk for blueberry kefir and added a tablespoon more of peanut butter to offset the kefir. I do have almond milk and coconut milk in my fridge and no real milk, but I eat kefir because it has WAY, WAY more probiotic for your gut flora balance than yogurt does and yogurt is pretty much pointless as far as probiotic goes! Sorry to burst that bubble for you (it still has other benefits, don’t get me wrong, but kefir has far more). You should replace the sugar you put in your smoothies and coffee with coconut palm sugar. It has a lower glycemic index (makes your insulin spike less which is better for your immune system and liver etc.), it has a few nutrients like potassium (although in low quantities), it’s not processed terribly like table sugar (it’s made in a healthy way), and it tastes great unlike sugar substitutes which are really bad for you (the red, yellow, and blue sugar packets). I still use regular sugar when I bake of course because it is finer and that is a necessary characteristic for making butter and whip cream and such (sorry Rachael, haha! don’t spank me momma! ;) ). But for everyday use, go for the coconut sugar! Did you know that sugar causes heart disease and not fat?? Eat away on the healthy saturated fats fats like coconut oil and avovado! The cholesterol-raising saturated fat myth has been disproven! Also, wheat is what is making your belly fat (studies prove it), not saturated healthy fats! Also, what Detoxionista did with the dates replacing sugar is a great way to cut processed sugar out of your diet! Processed sugar is bad for you, mk? ;) Natural sugar from fruits is the healthy way to go and cooking with dates is a great way to add natural sugar into your food. Cutting sweets out of your diet if you are simply trying to lose weight is a recipe for disaster, in my opinion, but if you are on the candida diet by all means cut those sweets out and contact Rachael about that, because she is an expert.

 

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Updates about me: Spoons for Austin

brendahankins:

Latest post to my other blog, The Diary of an Ill Girl.

Originally posted on THE DIARY OF AN ILL GIRL:

Extra/flare symptoms at this moment include: Fever, whole body is hot to touch (if you’re sitting next to me I feel like a furnace), a feeling I can only describe as my brain feels on fire &swollen like meningitis (Lol), hot face/facial flushing, hot and sore throat, swollen lymph nodes, headache, falling asleep, mental &physical exhaustion, dizzy; sudden inability to tolerate looking at busy patterns, lights, moving things; feeling extra braindead/dumb, sinus pain &sniffles, bladder discomfort, butterfly facial rash, and arm rash.. And of course my other usual everyday aches and pains.. My immune system is having an M.E./CFIDS flare. Seems to be post-exertional from my trip to Austin over the weekend. I’m sure some people saw my trip posts on FB and thought, “There’s no way she’s as sick as she says she is.” But what happens with people who have an illness like mine is that we pay…

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