#MEAction report on Drs. Lipkin and Hornig turning up the heat!!!



Declining on a roller coaster


Hard to believe my last entry was only written 18 days ago. But M.E./CFS can rapidly decline in a few hours so it’s no surprise. I feel like I’m losing control of my body and life. I am. When I saw my mom Thursday she said I seemed drunk (she knows I’m not – she’s just saying it seemed like it). I couldn’t hear what she was saying, I couldn’t reply to her, I was dropping things, I was a zombie, etc. I had been feeling improved on LDN (low-dose naltrexone, a neuroimmune disease medicine) and now I am slipping into a sort of relapse. Just now I wondered if maybe I made myself sick by trying to ice skate again (skating was my childhood hobby). I was trying to enjoy as much of life as I could and maybe I should have just rested and enjoyed being able to…

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