I am hurt right now and I am angry. I am also having a flare of my MECFS as the price I pay for trying to enjoy a semi-normal holiday weekend with my family.
I just read a facebook post from a desperately ill ME patient that had been turned away from the University of Pennsylvania. She has lost 20 pounds in the last four months and is at 83 pounds. The reason she was turned away: her diagnosis- Chronic Fatigue Syndrome. The hospital was even threatening to call the authorities as she begged for their help.
This post reminded me of the handful of times that I have been so desperately ill and beside myself with ME that I was suicidal. My obviously worried family would beg me to go to the hospital, but I had been down that path before. It would be a waste of hundreds of…
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